Comprehensive HHT Outcomes Registry of the United States (CHORUS)
NCT06259292
This study is recruiting at 16 US sites in 15 states, according to its ClinicalTrials.gov record last updated .
Summary
The Comprehensive HHT Outcomes Registry of the United States (CHORUS) is an observational registry of patients diagnosed with Hereditary Hemorrhagic Telangiectasia (HHT). The purpose of this study is to better understand HHT, the symptoms and complications it causes, and the impact the disease has on people's lives. The investigators will collect long-term information about the participant, allowing us to understand how the disease changes over time, and what factors can influence those changes. Ultimately, this should help improve treatments for the disease.
Shortened from the sponsor's brief summary. View official record on ClinicalTrials.gov
Conditions studied
- Hereditary Hemorrhagic Telangiectasia
- Arteriovenous Malformations
- Telangiectasia
- Epistaxis
- GastroIntestinal Bleeding
- Cerebral Arteriovenous Malformations
- Vascular Malformation
Eligibility basics and study details
- Study type
- Observational
- Phase
- Not applicable
- Ages
- Any age
- Sex
- All
- Healthy volunteers
- Accepted
- Sponsor
- Cure HHT
- Last updated on ClinicalTrials.gov
- July 17, 2026
These are the basic criteria only. The full inclusion and exclusion criteria are on the official record, and the study team decides who can take part.
US recruiting sites
Alabama · 1
- University of Alabama at Birmingham · Birmingham, AL
California · 2
- University of California, Los Angeles · Los Angeles, CA
- University of California, San Francisco · San Francisco, CA
Colorado · 1
- University of Colorado, Denver · Aurora, CO
Connecticut · 1
- Yale University · New Haven, CT
Georgia · 1
- Augusta University · Augusta, GA
Massachusetts · 1
- Massachusetts General Hospital · Boston, MA
Minnesota · 1
- Mayo Clinic · Rochester, MN
Missouri · 1
- Washington University School of Medicine · St Louis, MO
New York · 1
- Columbia University · New York, NY
North Carolina · 1
- University of North Carolina, Chapel Hill · Chapel Hill, NC
Ohio · 1
- The Cleveland Clinic · Cleveland, OH
Oregon · 1
- Oregon Health and Science University · Portland, OR
Pennsylvania · 1
- University of Pennsylvania · Philadelphia, PA
Texas · 1
- University of Texas Southwestern · Dallas, TX
Utah · 1
- University of Utah · Salt Lake City, UT
Source: ClinicalTrials.gov, data processed . Recruiting US sites filtered by distance and site status; summaries shortened.