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Multicenter HomeVENT: Home Values and Experiences Navigation Track

NCT06102330

This study is recruiting at 4 US sites in 4 states, according to its ClinicalTrials.gov record last updated .

Summary

This is a multicenter study to test a decision-making support process for families and clinicians facing decisions about chronic home ventilation for a child. The investigators hypothesize that the intervention will increase family preparedness for decision-making and will improve clinician-family shared-decision making. Half of families will be assigned to "usual care" arm and half to the "intervention" arm. Intervention families will view the study website with study staff and will answer questions related to website content.

Shortened from the sponsor's brief summary. View official record on ClinicalTrials.gov

Conditions studied

  • Pediatric ALL
  • Respiratory Insufficiency
  • Communication

Eligibility basics and study details

Study type
Interventional
Phase
Not applicable
Ages
18 years and older
Sex
All
Healthy volunteers
Accepted
Sponsor
Johns Hopkins University
Last updated on ClinicalTrials.gov
July 16, 2026

These are the basic criteria only. The full inclusion and exclusion criteria are on the official record, and the study team decides who can take part.

US recruiting sites

Florida · 1

  • Johns Hopkins All Childrens Hospital · Tampa, FL

Louisiana · 1

  • Children's Hospital New Orleans · New Orleans, LA

Maryland · 1

  • Johns Hopkins University School of Medicine · Baltimore, MD

Washington · 1

  • Seattle Childrens Hospital · Seattle, WA

Source: ClinicalTrials.gov, data processed . Recruiting US sites filtered by distance and site status; summaries shortened.