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Caregiving Networks Across Disease Context and the Life Course

NCT05007990

This study is recruiting at 1 US site in 1 state, according to its ClinicalTrials.gov record last updated .

Summary

Background: In the U.S., about 53 million informal, unpaid caregivers provide care to a person who is ill, is disabled, or has age-related loss of function. These caregivers may be adult children, spouses, parents, or others. The stress of providing long-term care affects caregivers health and well-being. Researchers want to learn more about this stress and its effects. Objective: To learn how the caregiving process affects the health and well-being of caregivers over time.

Shortened from the sponsor's brief summary. View official record on ClinicalTrials.gov

Conditions studied

  • Inherited Metabolic Disorders
  • Undiagnosed Diseases
  • Batten's Disease
  • Tay Sachs
  • Diabetes

Eligibility basics and study details

Study type
Observational
Phase
Not applicable
Ages
18 to 100 years
Sex
All
Healthy volunteers
Accepted
Sponsor
National Human Genome Research Institute (NHGRI)
Last updated on ClinicalTrials.gov
September 15, 2026

These are the basic criteria only. The full inclusion and exclusion criteria are on the official record, and the study team decides who can take part.

US recruiting sites

Maryland · 1

  • National Institutes of Health Clinical Center · Bethesda, MD

Source: ClinicalTrials.gov, data processed . Recruiting US sites filtered by distance and site status; summaries shortened.