MyVHL: Patient Natural History Study
NCT03749980
This study is recruiting at 1 US site in 1 state, according to its ClinicalTrials.gov record last updated .
Summary
MyVHL is a multi-patient database which helps researchers identify patterns across VHL patients. MyVHL provides you -and researchers -with more complete information about VHL, like how your lifestyle, medications, and other factors impact the disease and quality of life. These insights help you better understand the condition and help researchers know where to focus their efforts. Due to its rarity, there is less understanding of VHL and the factors that may have an impact.
Shortened from the sponsor's brief summary. View official record on ClinicalTrials.gov
Conditions studied
- Von Hippel-Lindau Disease
- Hereditary Leiomyomatosis and Renal Cell Cancer
- Birt-Hogg-Dube Syndrome
- SDHB Gene Mutation
Eligibility basics and study details
- Study type
- Observational
- Phase
- Not applicable
- Ages
- Any age
- Sex
- All
- Healthy volunteers
- Accepted
- Sponsor
- Joshua Mann, MPH
- Last updated on ClinicalTrials.gov
- April 26, 2024
These are the basic criteria only. The full inclusion and exclusion criteria are on the official record, and the study team decides who can take part.
US recruiting sites
Massachusetts · 1
- VHL Alliance · Boston, MA
Source: ClinicalTrials.gov, data processed . Recruiting US sites filtered by distance and site status; summaries shortened.