North American Mitochondrial Disease Consortium Patient Registry and Biorepository (NAMDC)
NCT01694940
This study is recruiting at 14 US sites in 10 states, according to its ClinicalTrials.gov record last updated .
Summary
The North American Mitochondrial Disease Consortium (NAMDC) maintains a patient contact registry and tissue biorepository for patients with mitochondrial disorders.
Shortened from the sponsor's brief summary. View official record on ClinicalTrials.gov
Conditions studied
- Mitochondrial Disorders
- Mitochondrial Genetic Disorders
- Mitochondrial Diseases
- Disorder of Mitochondrial Respiratory Chain Complexes
- Deletion and Duplication of Mitochondrial DNA
Eligibility basics and study details
- Study type
- Observational
- Phase
- Not applicable
- Ages
- Any age
- Sex
- All
- Healthy volunteers
- Accepted
- Sponsor
- Columbia University
- Last updated on ClinicalTrials.gov
- February 4, 2026
These are the basic criteria only. The full inclusion and exclusion criteria are on the official record, and the study team decides who can take part.
US recruiting sites
California · 2
- University of California San Diego · San Diego, CA
- Lucile Packard Children's Hospital · Stanford, CA
Colorado · 1
- Children's Hospital of Colorado · Aurora, CO
District of Columbia · 1
- Children's National Medical Center · Washington D.C., DC
Massachusetts · 1
- Massachusetts General Hospital · Boston, MA
Minnesota · 1
- Mayo Clinic · Rochester, MN
New York · 2
- Columbia University Medical Center · New York, NY
- Virtual Site (Remote enrollment) · New York, NY
Ohio · 2
- Akron Children's Hospital · Akron, OH
- Cleveland Clinic · Cleveland, OH
Pennsylvania · 2
- The Children's Hospital of Philadelphia · Philadelphia, PA
- Children's Hospital of Pittsburgh · Pittsburgh, PA
Texas · 1
- Baylor College of Medicine · Houston, TX
Washington · 1
- Seattle Children's Hospital and Regional Medical Center · Seattle, WA
Source: ClinicalTrials.gov, data processed . Recruiting US sites filtered by distance and site status; summaries shortened.