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Rare Kidney Stone Consortium Patient Registry

NCT00588562

This study is recruiting at 3 US sites in 2 states, according to its ClinicalTrials.gov record last updated .

Summary

The purpose of this study is to collect medical information from a large number of patients in many areas of the world with primary hyperoxaluria (PH), Dent disease, Cystinuria and APRT deficiency. This information will create a registry that will help us to compare similarities and differences in patients and their symptoms. The more patients we are able to enter into the registry, the more we will be able to understand the Primary Hyperoxalurias,Dent disease, cystinuria and APRT and learn better ways of caring for patients with these diseases.

Shortened from the sponsor's brief summary. View official record on ClinicalTrials.gov

Conditions studied

  • Primary Hyperoxaluria
  • Dent Disease
  • Cystinuria
  • APRT Deficiency

Eligibility basics and study details

Study type
Observational
Phase
Not applicable
Ages
0 to 100 years
Sex
All
Healthy volunteers
Not accepted
Sponsor
Mayo Clinic
Last updated on ClinicalTrials.gov
July 10, 2026

These are the basic criteria only. The full inclusion and exclusion criteria are on the official record, and the study team decides who can take part.

US recruiting sites

Minnesota · 2

  • Dent Disease Registry -Mayo Clinic · Rochester, MN
  • Primary Hyperoxaluria Registry - Mayo Clinic · Rochester, MN

New York · 1

  • Cystinuria Registry - New York University · New York, NY

Source: ClinicalTrials.gov, data processed . Recruiting US sites filtered by distance and site status; summaries shortened.